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What Doctors Aren’t Telling You About Steroid Creams – Janelle’s Incredible Story

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When Janelle Norman started to experience red, patchy rashes on her hands and feet at age 24, she had no idea about the frightening road that lay ahead of her. It would soon become a battle for her health only imagined in her wildest nightmare, one that would teach her about a failing medical system and the depths of her own strength.

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The outbreak of eczema at age 24 didn’t come as too much of a surprise, Janelle explains, having previously endured small, random outbreaks of eczema in her early childhood.

“My eczema showed up when I was fairly young, probably 3 or so. My mom, being a nurse, was pretty knowledgeable and tried to do what she could. I believe she used hydrocortisone a little bit, but used another product called ‘goose grease’ as well. I grew out of that stage in my early childhood.”

After seeing her doctor, Janelle was ordered to use a steroid cream once again, which eliminated the outbreak for a short while. Two weeks later, however, the rash had resurfaced, but this time with increased severity.

Janelle saw a repeating pattern taking place, that is, her eczema would clear up briefly whenever she applied the steroid cream, but would return with renewed force as soon as she stopped.

Concerned, Janelle asked her dermatologist to conduct allergy testing to see if there were any particular irritants that might be contributing to her outbreaks. He assured Janelle that she was likely hypersensitive to many foods, and that avoiding these triggers would prove to be difficult. Instead, he prescribed her a new cream.

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When asked about any potential long-term side effects from using the cream, Janelle’s doctor answered, “I use this [product] on babies.”

Janelle’s Worsening Condition

But the steroid cream was showing poor results, as Janelle watched her body slowly succumb to the spread of a relentless disease. By this time, her thighs, arms, shoulders, and collarbone area were engulfed by a red, itchy rash.

In addition to her skin problems, Janelle was developing sensitivities to certain foods, including various fruits and spices. This prompted her to switch dermatologists to get a second opinion on her condition.

Lo and behold, her doctor found she was allergic to an array of plants native to her hometown Kamloops, a small city located in the semi-arid region of central British Columbia.

While her new dermatologist did his best to try and gain control over the situation, Janelle was beginning to realize that her eczema was now running the show. Whenever she tried to wean herself off of the creams, a vicious retaliation of eczema would always proceed her abandon.

Not to mention, Janelle’s asthma was now acting up, creating an unwelcome dependence on her steroid inhaler.

The Answer She Was Looking For

In what seemed like a universal dump of bad luck, Janelle’s new dermatologist revealed that he would be moving his practice across the

Janelle and her boyfriend, Jason.

Janelle and her ex-boyfriend, Jason.

country, leaving Janelle in critical condition.

Her eczema had become the focal point of her existence, she said, affecting her sleep, career, and overall quality of life.

“I was now having lots of trouble sleeping due to the itching, having trouble finding comfortable clothing, and it was affecting my social life. I was having constant allergic reactions to almost everything I was eating… eventually I had to quit my dream job, I produced and sold over 400 paintings since 2009, an absolute dream career that was taken away from me because of my eczema.

“I was desperately searching for answers on the internet like I had become obsessed with [it]… No matter where I turned it seemed like nothing was going to help me.”

But then one day while searching for information on ‘incurable eczema’, Janelle came across the answer to her torment she’d been waiting for: “Have you tried everything to cure your eczema except stopping your steroid creams? You might have steroid addicted skin.”

This was a moment of revelation for Janelle.

“I all of sudden knew that this was the answer I had been looking for for the past few years. My skin had become hooked on the topical steroid creams, and it was inducing the condition to worsen and slowly damage the systems in my body.”

Finally, Janelle had found information on her mystery condition. For the first time in years, she felt relief.  “The mystery was solved!” she thought.

The Worst Yet To Come

But there was a catch to the ‘light at the end of the tunnel,’ a catch perhaps more frightening than the disease itself.

“Almost immediately after quitting the creams, one goes through a massive withdrawal process in order to detoxify and heal the body. I saw pictures on [the forum] of horrible injuries to the face and limbs of people that looked like they had been burned. Some were mild and some were terrifying.”

Janelle figured her withdrawal symptoms wouldn’t be as bad as the more severe cases considering she had only been using the creams heavily for a few years. Unfortunately, no doctor had any answers for her. She was alone in her decision to move forward, but knew there was no other option.

“I felt very passed down through the medical system. I decided that if I was going to get any better I was taking my life into my own hands and trusting my gut. Even though I would go through hell I was determined to get my life back. It was time to quit the steroids. I came back home, and threw all the creams in the garbage on January 5, 2014.”

When Withdrawal Symptoms Became Life Threatening

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Janelle during the peak of her steroid cream withdrawal symptoms. Notice the intense swelling and inflammation around her eyes.

“Never could I have prepared for what would take place over the next few weeks” Janelle says.

“The skin on my face started to split open all over… and my neck did the same. It was utterly horrific. It was like I was being set on fire and my skin was bursting open…”

Janelle’s mother arrived from out of town to find her daughter in serious condition. Her face had become infected from the large cracks in her skin, and fluid was now oozing out of the lesions, signalling it was due time to get Janelle to a hospital.

When she arrived in the emergency room, Janelle was met with a roomful of curious stares from both patients and nurses. The staff thought she was a chemical burn victim at first, Janelle explains.

Furthermore, the ER doctor was becoming frustrated because Janelle and her loved ones were refusing steroid shots meant to subdue inflammation. He had never even heard of steroid cream withdrawal before.

“He didn’t understand what I meant when I said I was addicted to the steroids.”

The Road To Recovery

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When doctors first saw Janelle during the worst of her steroid cream withdrawal, their first thoughts were that she must have experienced a critical chemical burn.

After receiving antibiotic therapy to treat her infection, Janelle spent the rest of her healing phase at home.

The next few weeks proved extremely difficult for Janelle. The initial flare-up had deemed her face unrecognizable. Janelle explains how she basically “lived in her bathtub” due to the excruciating pain she was experiencing.

In the months that followed, Janelle faced many small flare-ups, the stress of which seemed to be causing her hair to fall out.

“My skin started to ooze fluid… I would soak through countless changes of clothes and the ooze was a terrible smell of burned raw skin. It was like I had been thrown into the most intense battleground for my health ever.”

Day by day, she patiently waited for her body to heal, with hope for the day she would see her recovery.

Janelle’s Passion To Spread Awareness About Steroid Cream Withdrawal

Like so many others going through steroid cream withdrawal, Janelle’s road to recovery doesn’t have a fixed happy ending. One year after her steroid cream cessation, Janelle is still dealing with withdrawal symptoms, though her most severe side effects have subdued. Many people experience random outbreaks for years to follow, an agonizing path that sees many people giving up and returning to the creams.

Today, Janelle finds herself passionate about speaking about steroid cream withdrawal, with the hope of helping others who may be experiencing the same thing, or even better, stopping people from using the creams in the first place.291895_10150881939615114_821014403_n

“One year ago I jumped into the most intense journey I would ever take… the last 365 days have been a true test of willpower, strength, courage, humility, and hope,” she wrote to her friends and family on her Facebook page. 

“I [was] hesitant to share my photos of what happened throughout 2014, but I feel the public should know how seriously horrific the [side-]effects of hydrocortisone and topical steroid creams can be.

I need to spread the word – because our dermatologists are NOT telling anyone about this. In fact very few of them even understand that it is a problem. There are few medical facilities that understand or acknowledge TSA/TSW, because the symptoms present themselves kind of on the sly.

She urges anyone who may be experiencing symptoms of steroid cream withdrawal to visit itsan.org, a non-profit organization aimed at providing people with information and resources about SCW.

I feel like if my skin condition was given proper care in the beginning (like further testing and exploration into the cause of my eczema) I may have been able to avoid [all of this]… Even when I had asked the first dermatologist to allergy test me, he had said to stick to the creams because my allergies would have been impossible to track down and address all together… So basically, he was treating the symptom with a bandaid for years… a bandaid that almost killed me.”

We have the power to stop this suffering from happening to more people, so please, share this story with your family and friends and get the word out about the dangers of steroid creams. This extends to people taking oral steroid medication and people using steroid inhalers for asthma as well. It is imperative to be asking your doctor about any and every side effect with any recommended medication, because as we’ve seen, the consequences can be fatal.

Have you or anyone you know experienced steroid cream withdrawal? Please share your story or thoughts with us in the comment section below!

See also: How A Mother Cured Her Daughter’s Eczema With A Raw Diet

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Awareness

Glyphosate & Colorectal Cancer in Young Adults

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In Brief

  • The Facts:

    This article was written by By Lyn Redwood, RN, MSN, President of Children’s Health Defense.

  • Reflect On:

    How did our federal health regulatory agencies ever approve something so dangerous and damaging to human health?

In Part I, “The Disturbing Increase in Colorectal Cancer in Young Adults,” we called attention to the steep rise in colorectal cancer incidence in young people in their twenties and thirties and discussed the risks associated with viral vaccines. In Part II, we discuss glyphosate as another plausible culprit in the colorectal cancer epidemic.

Gut bacteria play a pivotal role in shoring up brain health and overall health. This fact has become a widely acknowledged talking point in scientific circles as well as in the popular press. The reverse is also true—when diet or environmental factors produce gut dysbiosis (an imbalance of the microbes that reside in the gastrointestinal tract), the imbalance can “impact the pathologies of many diseases.”

Colorectal cancer has increased by 51% in Americans under age 50 since the mid-1990s, and researchers suggest that “early life exposures…may be contributing to the rise” in that age group. A leading hypothesis is that gut dysbiosis is playing an active part—perhaps by disrupting young people’s immune response and triggering overactivation of cell signaling proteins in the colon. Some researchers have even posited a “bidirectional self-feeding relationship” between the gut microbiome and colorectal cancer, with gut dysbiosis contributing to colorectal cancer growth and progression, and tumor growth in turn disturbing the gut microbiome.

Autism investigators have been at the forefront of research on the gut microbiome. They point to environmental toxins and antibiotic use as two influences that can shift the gut’s microbial composition in an unfavorable direction. Scientists attribute up to 85% of colorectal cancers to environmental and microbial factors. Glyphosate (the leading ingredient of Roundup) is both an herbicide and a patented antimicrobial. Could the upward trend in glyphosate usage that began roughly three decades ago have something to do, therefore, with the skyrocketing incidence of colorectal cancer in young people? Although recent court cases linking Roundup to cancer have focused mostly on other types of cancer such as non-Hodgkin’s lymphoma, the evidence that glyphosate wreaks havoc with gut bacteria has led many researchers to suspect that the answer is yes.

Glyphosate in the air and everywhere

These days, glyphosate exposure affects everyone, not just farmworkers. Newsweek reported in 2016 that the world is “awash in glyphosate,” with a fifteen-fold increase in Roundup use since the mid-1990s. American agriculture sprays glyphosate on at least 70 food crops. As a result, glyphosate residues are now rampant in the U.S. food supply, including in the processed Cheerios, Doritos and Oreos so frequently gobbled up by children and adolescents.

Studies have documented concerning levels of glyphosate in Americans’ urine and breastmilk. One study of U.S. adults found that average glyphosate levels in urine increased by a factor of thirteen over the two-decade period between 1993–1996 and 2014–2016—and seven out of ten study participants had glyphosate levels above the limits of detection. Mean levels of a glyphosate metabolite called AMPA measured approximately 36 times higher in the second time period. Moms Across America has reported high levels of glyphosate in three out of ten breastmilk samples tested.

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Glyphosate and the gut

A variety of in-progress clinical trials are exploring the link between the intestinal microbiota and colorectal cancer. Completed studies have already shown that individuals with colorectal cancer “display instability in the composition of their gut bacterial communities when compared with healthy controls” and have elevated levels of unfavorable bacterial species. Several of these species exhibit “pro-inflammatory and pro-carcinogenic properties, which could consequently have an impact on colorectal carcinogenesis.” In fact, researchers suggest that measurement of these out-of-whack bacterial populations could have “potential value as a marker of colon cancer.”

The widespread and intensive use of glyphosate has exacerbated “distortions in microbial communities.” Researchers note that:

Shifts in microbial compositions due to selective pressure by glyphosate may have contributed to the proliferation of plant and animal pathogens. …[W]e hypothesize that the selection pressure for glyphosate-resistance in bacteria could lead to shifts in microbiome composition and increases in antibiotic resistance to clinically important antimicrobial agents.

Researchers Anthony Samsel and Stephanie Seneff have written extensively about glyphosate in a series of papers elucidating “pathways to modern diseases.” They note that in animals, glyphosate “has been shown to disrupt gut bacteria…, preferentially killing beneficial forms and causing an overgrowth of pathogens.” Overgrowth of opportunistic pathogens can lead to a breakdown of the gut lining and the development of “leaky gut” syndrome. Researchers describe “the loss of gut barrier integrity” as “an early event which contributes to chronic inflammation,” and they have observed both gut dysbiosis and a dysfunctional intestinal barrier in colorectal cancer patients.

Turning a blind eye

Far from sticking up for American consumers, U.S. regulatory agencies such as the Environmental Protection Agency (EPA) and Food and Drug Administration (FDA) have largely turned a blind eye to concerns about glyphosate safety. The environmental website EcoWatch reported in 2016 that although the FDA routinely tests foods for pesticide residues, it had never tested for glyphosate residues until that year; EPA critics believe that the agency “has been unduly influenced by the agrichemical industry.” EcoWatch also observed that U.S. regulators allow a much higher “acceptable daily intake” of glyphosate than is permitted in other countries.

In July, 2019, Children’s Health Defense filed a lawsuit against Beech-Nut Nutrition Company, asserting that the company’s labeling and marketing practices “deceive parents who seek to be mindful of what is contained in the baby foods they provide to their infants.” Independent laboratory testing identified multiple synthetic pesticides, including glyphosate, in Beech-Nut’s “Naturals” line of baby food. Children’s Health Defense and Chairman and Chief Legal Counsel Robert F. Kennedy, Jr. take the health of our most precious resource—our children—very seriously and are at the forefront of legal efforts to challenge fraud and free children from exposure to toxic chemicals.

The rising toll of colorectal cancer deaths in young people who are in the prime of life points to the urgent need to reset regulatory priorities and put people before profits. Glyphosate’s deleterious effects on the gut microbiome—just one of many problems associated with the herbicide—are one more nail in the coffin for a toxic product that is well past its use-by date.

Sign up for free news and updates from Robert F. Kennedy, Jr. and the Children’s Health Defense. CHD is planning many strategies, including legal, in an effort to defend the health of our children and obtain justice for those already injured. Your support is essential to CHD’s successful mission.

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Awareness

Johnson & Johnson Found To Have Knowingly Allowed Asbestos In Their Baby Powder

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In Brief

  • The Facts:

    Johnson and Johnson have recently lost lawsuits for negligence in knowingly allowing carcinogenic substances in their talc-based hygiene products.

  • Reflect On:

    Are we starting to turn the page on an era where human health and safety are not the prime considerations in the manufacturing of consumer products?

We are starting to awaken to the fact that it seems to be the rule, and not the exception, that large Western corporations put profits above human health considerations. The only time they seem to give any regard to human health concerns is when their forecasts of potential lawsuits down the road would likely exceed the cost measures needed to ensure the safety of their product.

Johnson & Johnson is just one of a long line of corporate perpetrators who believed that covering up and lying about known health concerns would make better business sense than taking the time and resources to actually address those health concerns within their products.

Contaminated Baby Powder: The Height Of Indignity

One would think, regardless of an understanding that the bottom line is a priority for most private companies, that the health and safety of a nursing mother and her newborn child would be sacrosanct for any industry. The reality is that this is simply not the case, even though J&J could have mitigated this problem from the start.

Companies that mine talc are required to take extra steps to ensure the absence of asbestos in their talc. Instead, J&J allegedly went to great lengths to fake it.

Not only did the company know about the asbestos contamination, evidence suggests, but J&J also failed to warn its customers about the link between Baby Powder and cancer or replace its talc with a safer alternative. As a result, J&J guaranteed its customers’ exposure to asbestos.

And regardless of their size or numbers, asbestos fibers are lethal at any capacity. As the World Health Organization (WHO) has stressed repeatedly, there is no safe level of exposure. (source)

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The Testimony of Scientist James Webber

Baby Powder’s contamination with asbestos (a mineral that naturally occurs near talc) has long been the subject of lawsuits. But only in recent years has evidence begun to unravel J&J’s defense – that the company had no idea – and threatened its success in lawsuits to come.

In March, a California jury awarded $29 million to Terry Leavitt, a woman who said that asbestos in Johnson & Johnson’s talcum-powder-based products caused her terminal mesothelioma. Environmental scientist James Webber testified in her high-profile California trial and made these observations:

During several hours on the stand, Webber explained how he ran tests that showed “clear” evidence of asbestos contamination in the mines from which J&J sourced talc.

“The testing I have seen [shows] that it was present at least as early as 1971 and up through the late 1990s,” said Webber, who ran an asbestos laboratory in New York state.

Despite denying it publicly, J&J had observed this contamination in internal memos. Its notes dismissed the amount of asbestos in its talc as “but a trace,” Webber alleged. But that was just an optimistic interpretation of superficial testing, he said: the tests used methods too weak to detect microscopic asbestos fibers. Webber insisted the actual tests results revealed there could be millions of asbestos fibers per gram of talc.

And J&J’s inaccurate reports were allegedly only the tip of the iceberg. In some instances, Webber said, photos attached to J&J’s reports revealed that “they had been seeing it and not reporting it.”  (source)

And It’s Getting Worse

The $29 million verdict, in California Superior Court in Oakland, was the latest defeat for the healthcare conglomerate facing more than 13,000 talc-related lawsuits nationwide. And things may be getting even worse for J&J, according to ZeroHedge:

Johnson & Johnson shares are down over 5% after Bloomberg reports that, according to people with knowledge of the matter, the U.S. Justice Department is pursuing a criminal investigation into whether Johnson & Johnson lied to the public about the possible cancer risks of its talcum powder…

Now, a grand jury in Washington is examining documents related to what company officials knew about any carcinogens in their products, the people said.

The Takeaway

It seems as though corporations have long been willing to take the calculated risk of short-cuts and denials instead of ensuring that their products are safe for public use. My suspicion is that a part of our collective awakening process will be issuing in a new business paradigm in which human health and safety become paramount.

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Awareness

Prescription Infant Formulas Found To Be Contaminated With Aluminum

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In Brief

  • The Facts:

    Multiple brands of prescription infant formula were found to contain high levels of aluminum.

  • Reflect On:

    Should we be questioning the quality of products that come from pharmaceutical production? Do we veer away from natural methods of raising children more than we should? At what cost?

You may not think aluminum is a big deal, but it is. For anybody who has looked into aluminum toxicology, it’s quite clear and apparent that it has no place inside of any living biological organism. Putting it simply, it wreaks havoc on our biology. High amounts of aluminum have been found in the brains of people with Alzheimer’s disease, with experts in the field believing that aluminum brain accumulation may be one of the main causes of Alzheimer’s disease.

It’s also been discovered within the brains of MS patients, and some of the highest aluminum content ever recorded in brain tissue has also been discovered in people with autism. Aluminum is associated with several diseases. But an adult body can do a great job of flushing out aluminum.

Despite the fact that aluminum has no place within earth’s biota, it’s still present in many of our medications, our food, and even in the water that we drink due to contamination since the industrial revolution. Aluminum inside the body is a new phenomenon and still understudied. Again, there is a threshold, and aluminum that is injected via vaccines doesn’t exit the body–there is strong evidence that it remains inside the body and ends up in distant organs and eventually inside of the brain. If you want to access more studies on that topic, you can read this article I published that provides them and goes into more detail. You can also watch this interview with Christopher Exley, where he also points to that fact.

A new study published in the International Journal of Environmental Research and Public Health has shown that multiple popular infant prescriptions are contaminated with aluminum. You may be asking how much aluminum, but the authors make it a point to stress that there are no safe amounts of aluminum levels that can be inside of a human body, let alone a newborn baby. That being said, the amounts found are listed within the abstract of the study:

Historical and recent data demonstrate that off-the-shelf infant formulas are heavily contaminated with aluminium. The origin of this contamination remains to be elucidated though may be imported via ingredients, packaging and processing. Specialised infant formulas exist to address health issues, such as low birth weight, allergy or intolerance and medical conditions, such as renal insufficiency. The aluminium content of these prescription infant formulas is measured here for the first time. We obtained 24 prescription infant formulas through a paediatric clinic and measured their total aluminium content by transversely heated graphite furnace atomic absorption spectrometry following microwave assisted acid/peroxide digestion. The aluminium content of ready-to-drink formulas ranged from 49.9 (33.7) to 1956.3 (111.0) μg/L. The most heavily contaminated products were those designed as nutritional supplements for infants struggling to gain weight. The aluminium content of powdered formulas ranged from 0.27 (0.04) to 3.27 (0.19) μg/g. The most heavily contaminated products tended to be those addressing allergies and intolerance. Prescription infant formulas are contaminated with aluminium.

Another very important point made right off the bat by the authors:

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Human exposure to aluminium is a serious health concern. Aluminium exposure in infants is understandably a burgeoning issue. While infant exposure to aluminium continues to be documented, its consequences, immediate and in the future, have received only scant attention and research is required to understand the biological availability of aluminium through formula feeding. For example, how much aluminium is absorbed across the neonate gut and its subsequent fate, including excretion.

There is already too much aluminium in infant formulas and herein we have measured its content in a large number of prescription formulas, products which are fed to vulnerable infants in their first months of life. Many of these products are heavily contaminated with aluminium.

As for the specific infant formulas, you can refer to the study. The researchers obtained 24 prescription infant formulas via the Paediatric Clinic of Russells Hall Hospital in Dudley, United Kingdom. The ready-to-drink and powdered products were new, ready-to-be used and unopened samples. These formulas are for babies with some sort of growth restriction, like for preterm infants or infants who have poor weight gain. There were also powdered formulas for allergies and intolerances and powdered formulas with additional amino acids.

The authors contacted each manufacturer and expressed that they denied knowing that there was any aluminum in their products, which means it’s still a mystery as to their source. The authors hypothesize on a number of ways that aluminum could be entering into the formulas.

In their conclusion, the authors emphasize that:

Where possible, breast milk feeding should be prioritised, as the aluminium content of breast milk is invariably an order of magnitude lower than in formula feeds. Where infant formulas are the only source of nutrition for many infants in their first weeks and months of life, aluminium ingested in formula feeds will be the major contributor to their body burden of aluminium. The last thing that vulnerable infants fed specialised formulas for their specific nutritional/medicinal need is additional aluminium in their diet.

Detoxing

There is a lot of information out there on how a person can detox from aluminum and other heavy metals. There are multiple studies, and based on what I’ve looked into, water with high amounts of Silica are effective in draining aluminum out of your body and brain. Herbs like cilantro and substances like chlorella and spirulina are also great for removing some metals. The information is out there, so be sure to do your research.

The Takeaway

It’s concerning to think about what these corporations are doing. Again, aluminum should hold no place in our society, it should’ve remained well below our surface as part of the Earth’s crust for a reason. It wasn’t until humans began digging it out and using it for a number of things, irresponsibly I might add, that we started to see the health implications which still go largely ignored by the medical community.

In fact, heavy metal accumulation and detoxification of aluminum haven’t been addressed at all, which is odd given the fact that heavy metal accumulation is linked to a variety of diseases.

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