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Awareness

The Fibromyalgia Lie: One Woman’s Battle With The Medical Condition That So Few Understand

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It’s the blank stare I get when I say the word ‘Fibromyalgia.’ That’s my answer to my good friend and fellow film-maker’s heartfelt plea of, “Why didn’t you tell me?”

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A couple weeks ago, he asked me an extremely personal question regarding my health; it turns out that a close friend of his – a young vibrant woman – was diagnosed with Chronic Fatigue Syndrome and, in his conversations with her about her challenging new reality, he had the unfortunate epiphany that another of his close friends was suffering from the same symptoms. So, he asked the question, and in alignment with my desire to always tell the truth, I caved and confessed my health care sins… Yes, I have a disease; it’s called Fibromyalgia and this is what it does.

My Experience With Fibromyalgia

It’s like waking up every day to the day after the flu. You know that low energy, drag yourself out of bed because everything aches day; the day when all the other symptoms of the flu have gone away and, even though you don’t have to spend the day praying to the porcelain God, you are still going to spend the day praying… Maybe you will pray for health; maybe you will pray for death; maybe you will just pray that you never, ever have to feel this way again. It’s that day when you aren’t coughing or sneezing anymore, but every muscle that was involved in the last few days of continued contraction for various disgusting reasons has decided to rebel. All those muscles you never knew you had; who knew an eyebrow could hurt so much? It’s that day when you are in a perpetual mental fog because, thanks to your body’s multiple natural cleansing methods, you haven’t really had much sleep in the last 48 hours due to the new demanding relationship that you have built with your tissue box and your toilet.

If you’ve ever had the flu, then you know all about that day, yet you also know that the day after isn’t as bad and eventually all that pain goes away. Unfortunately for me, and thousands (they say it could be millions) of others out there, that day never ends.

It’s the constant struggle of people afflicted with Fibromyalgia to try to explain where they hurt, how they hurt, and Heaven help us all, why they hurt. There are no outward signs, no discernible physical effects on the body, no marks, no bruising; Hell, half of the time, there aren’t even bags under my eyes. So, how do you explain a disease that you can’t see? My flu analogy is the closest I think I can come, but that’s not what this piece of writing is about.

A Confessional

This is a confessional. After my two hour long authentic and heartfelt conversation with my cherished friend, it has come to my awareness that I haven’t been honest. I haven’t been honest with my friends, with my family, with my readers, or with myself. I have spent so much time trying to keep up a normal life that I have forgotten to honor the truth of things as they are in my current reality. My current reality is this; I have Fibromyalgia but it does not have me. I have spent the last four years of my life – between being a wife, a mother, an author, a radio show host, and a documentary producer – dedicated to finding natural ways to manage this disease.

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I am proud to say that I am completely prescription free, thanks to the near fatal reaction four years ago to medications they were using to treat my disease, which forced me to find alternative methods of healing. For the most part, I get by, but, I have had to make some serious changes, both to my lifestyle and to my diet, and, as I have just discovered, I will have to continue to make more changes until I am completely comfortable with my state of health and wellbeing. I have had to sacrifice more than I could ever explain here, my family has had to sacrifice more than I am willing to admit here, and my friends – who would gladly do the same – have had to sacrifice nothing because, for the most part, I just never let them see how truly sick I was. I just kept telling that same old fibro lie – a lie I heard echoed today by a friend who also has fibro – “I’m fine.”

I did, however, say I would be honest, so, here it is. The truth is that I’m not fine. This past winter has challenged me to the brink of breaking. I might have a few good days, but I still have bad days and bad days can last a day, a week, or a few months. I never know, when a Fibro flare-up hits, if I will be able to get out of bed tomorrow, next week, or next month. Now, I know it sounds like I’m exaggerating, but that’s only because very few people are openly talking about the effects this disease is having on the people who have it or the people who love the people who have it. Why not? Is it because the medical community knows so little? Is it because the disease is still semi-controversial? Or is it simply because those of us who have it are too sick and too tired to take the time to be honest about how we really feel?

We suck it up and put on a show for the outside world – and, sometimes, even for those closest to us – because we’re in too much pain and we’re too exhausted to jump through the societal hoops of acceptance. So, I’ll take one for the team, We are sick! Not just ‘in our head, can think ourselves better, if only we could find something that makes us happy’ sick. There is actual scientific proof that this is a physical disease that is more than likely hereditary – my mom had it, but that’s a whole other blog – and we need help!

A Mission To Good Health

I’m on a mission; a mission not only to manage the symptoms using natural healing methods, but to share what I have learned with others. I’m on a mission to get healthier and stronger and to do whatever I have to do to take my life back. I’m on a mission to make sure that others out there who are praying for death have a voice willing to speak for them; somebody who is willing to fight for them and somebody who understands what it is to be them.

In the meantime, for those of you out there reading this who have Fibro; don’t give up, help is out there and there is hope for a brighter pain free future for all of us.

And for those of you reading this who have a friend or family member who has been diagnosed with Fibromyalgia; do the right thing. Look it up, find out what it means, find out how you can help. Take the time and care enough to do the research because trust me when I say they are too sick and tired of being sick and tired to explain it to you, and quite frankly, they shouldn’t have to.

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Awareness

New Study Shows What Disrupted Sleep Does To Your Mental Health

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In Brief

  • The Facts:

    A new study showed that those with less distinction with activity and sleep were 6 percent more likely to develop depression and 11 percent more likely to have bipolar disorder.

  • Reflect On:

    Your sleep is important. What are you doing to ensure you have good rest? Are you eating before bed? Using your phone? Both of these things contribute to poor sleep. You can use some of the tools below to improve your sleep.

We all know just how important it is to have a good nights rest, unfortunately for many of us, this is a fleeting dream. New research has emerged showing just how impactful a disrupted body clock and natural circadian rhythm can be for our mental health.

Researchers from the U.K. came to this conclusion after studying the circadian rhythm, which is our natural waking and sleeping patterns throughout the 24-hour sleep cycle.

Lead author of the study, Laura Lyall, a research associate in mental health and well-being at Glasgow University said in a statement, “In the largest such study ever conducted, we found a robust association between disruption of circadian rhythms and mood disorders.

“Previous studies have identified associations between disrupted circadian rhythms and poor mental health, but these were only small samples.”

The Study

Scientists from the University of Glasgow studied data collected on over 90,000 adults between the ages of 37 and 73 years old in the U.K., between 2006 and 2010. Each participant in the study wore an activity tracker on their wrist for 7 days between 2013 and 2015.

The data that was collected was used to calculate what is known as the relative amplitude. Researchers took note of how active the participants were in the busiest 10 hours of each day and compared that to their least active 5 hours in the day. The people with less of a distinction between active and resting periods scored a lower amplitude indicating that they were either not active enough during the day while they were awake or too active during the hours that are generally intended for sleep.

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Those who scored a lower amplitude were found to be at a greater risk for mental illness. Factors such as age, sex, smoking, childhood trauma, and educational attainment were also taken into account.

The study, published in The Lancet, showed how they were 6 percent more likely to develop depression and 11 percent more likely to have bipolar disorder. This particular group of participants were also more likely to feel unhappy, alone, unsatisfied with their health and even have slower reaction times.

Around one in 25 participants were about as active during the day as they were at night. These were “people who have very poor sleep hygiene, people on their mobile phones at midnight checking Facebook or getting up to make a cup of tea in the middle of the night,” Daniel Smith, professor of psychiatry and senior author of the study, told the Times.

“It could be that there is a direct causal link where circadian disruption causes impaired subjective well-being and increases the risk of mood disorder. Or it could be the opposite, that this circadian disruption is a consequence of mood disorder and its associated risk factors,” said Lyall.

Despite these limitations, the researchers say accelerometry-derived relative amplitude is “relatively cheaply and easily measured and might be useful for identifying people at greater risk of major depressive disorder or bipolar disorder, or subgroups of patients who might benefit from therapies aimed at improving circadian rhythmicity.”

Can You Relate?

I don’t know about you, but when I am restless at night or don’t get enough sleep I definitely feel it more during the day, with some mental fogginess and I find it much more difficult to find motivation during the day. Aside from the fact that we are on average not getting enough sleep, we, generally are out of sync with our natural circadian rhythms by being up late or sleeping well into the morning, regardless of the sunrise and sunset. Throw cell phones, tablets, blue light and EMF’s into the mix and it’s no wonder we aren’t finding the time to sleep and when we do, to actually sleep deeply.

While it can be difficult to change your sleeping patterns, it certainly could provide you with an extra boost of energy, clarity and perhaps even joy throughout your day. A good night’s rest is essential, some of the things you can do to ensure you are getting a good sleep are as follows:

  • Limit screen time to no later than one hour before bed, and use a blue light filter, or blue blocker glasses anytime you are staring at a screen when it is dark outside.
  • Try to go to bed a little earlier and wake up earlier. It is essential that we expose ourselves to total darkness while we sleep, it may be worth getting some really good curtains or an eye mask. Depending on where you live, waking up at sunrise and going to bed at sunset might be worth a try.
  • Keep cell phones and if possible all electronics out of your bedroom. Consider turning off your wifi router while you sleep at night as well as these have been known to disrupt melatonin production in the brain, which is essential for a good night’s rest.
  • Be sure and get some exercise during the day, even a brisk walk in the evening can help you to sleep better at night, but the more the better as your body will truly be tired and ready for bed. When we don’t get enough exercise sometimes our bodies are left feeling restless during the day.
  • Nothing beats a nice hot bath with epsom salts and lavender essential oil to help get you in a calm, relaxed and sleepy state of mind before bed.

What helps you get to bed at night?

Much Love

Get Your FREE In Depth Numerology Reading

Your life path number can tell you A LOT about you.

With the ancient science of Numerology you can find out accurate and revealing information just from your name and birth date.

Get your free numerology reading and learn more about how you can use numerology in your life to find out more about your path and journey. Get Your free reading.

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Awareness

If Your DNA Information Is Being Sold, Shouldn’t You Make The Profit?

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In Brief

  • The Facts:

    Companies like 23andMe, Ancestry.com and others are collecting your DNA data and can sell the data to third party companies. Timicoin is a blockchain based ecosystem that allows you to monetize your health data.

  • Reflect On:

    Shouldn't you have the option to sell your own data? Is your DNA data safe with some of these companies? The blockchain is helping to create further security and consumer-based monetization of personal data.

Amidst the rise in popularity of companies who take samples of our DNA in order to provide us with information about our ancestry and health risks, there are growing concerns that are not immediately apparent to the average consumer. While most are just happy to be getting exotic information about where they came from and what they should be watching out for health-wise, all for little more than a few hundred dollars, not many consumers are seeing this as a threat to their privacy, and more specifically, as a threat to their control over the most essential information about their unique personal identity–their DNA sequences.

“The key thing about your genetic data … it is uniquely yours. It identifies you, so if you are going to entrust it to a company, you should try to understand what the consequences are,” said Jennifer King, director of consumer privacy at Stanford Law School’s Center for Internet and Society, whose research on the issue and interviews with individuals shows a lack of consumer knowledge.

Company Disclaimers

Of course, companies who deal in such services will do all they can to convince consumers that their data is safe and secure. But as this CNBC article notes,

Companies in this space, including 23andMeVeritas Genetics and Ancestry, have a good reason to protect your DNA — their business future depends on maintaining the trust of consumers. But there are thorny issues related to genetic privacy that still today don’t have easy answers or iron-clad legislative protections. And regulators aren’t convinced they are doing right by consumers. A recent Fast Company report indicates that 23andMe and Ancestry are being investigated by the Federal Trade Commission over their policies for handling personal info and genetic data and how they share that info with third parties.

All of these companies say they have clear policies that they will not share your DNA with any third-party unless you explicitly consent to it:

23andMe provides consumers the choice of opting into research conducted on behalf of academic, nonprofit and industry organizations. They also offer an option to consent separately to specific disease studies in which their DNA is used in conjunction with for-profit drug companies, such as the Parkinson’s disease research conducted with Genentech and the lupus and IBD research conducted with Pfizer.

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Abuse Of Private Data

Hearing about research conducted on behalf of ‘academic, nonprofit and industry organizations’ reminds me of the article I wrote on Cambridge Analytica’s fraudulent effort to characterize themselves as an academic organization while mining people’s private Facebook information to target them with ads for the 2016 U. S. Presidential Election. Facebook knowingly sold the information to Cambridge Analytica demonstrating that, when it comes to big companies and corporations, the only thing we know for sure is that money and profit will eventually trump respect for the privacy of people’s information.

If there is money to be made by selling our personal information, corporations will do whatever they can to skirt around privacy agreements. They may even flat-out change their policy and inform us in a pages-long letter that they know no one reads and will simply click the ‘accept’ button. In the current environment, it is wise to be extremely cautious when deciding to consent to having one company share our information, especially our genetic information, with third parties.

Think about it. As technology evolves, surely there will be ways our DNA codes could be used in the future that we would not agree with. But once we have given our consent to the use of this most private information, we can no longer guarantee what happens with it. Wouldn’t it be great if WE had control over our genetic information, encrypted and only accessible by us, to use and share in a manner of OUR choosing?

If we so choose, we may even be able to profit from it. Did you know that health information is a commodity that is already collected and sold via third-party companies? Selling health data around the world is already a multi-billion dollar industry, much like how your data collected from Facebook is. But how do we get back control of our DNA information, which could be our most valuable resource about who we are?

Think outside the box. Think blockchain. Think Timicoin.

Timicoin

Timicoin is a platform bringing together a crypto token and the blockchain and is pioneering the tokenization of health information, including your DNA sequencing and other genetic information, through a decentralized blockchain ecosystem. They promise to allow users to monetize their own data, have access to their health information whenever they need it and verify that it is accurate.

The Timicoin platform is built on their own custom blockchain and it’s already fully functioning. This means that in a short time, you will be able to begin using Timicoin’s blockchain to monetize your health data. For more information, please refer to this earlier CE article. You can also read Timicoin’s White Paper here.

Shift In Business Paradigm

Analysts believe that Healthcare information on the blockchain will grow aggressively in the coming years given the global need for ease of sharing healthcare information. Secure storage of our DNA information is only one part of Timicoin’s larger endeavor to make your healthcare information available globally and instantaneously as needed, but only with your personal consent.

It represents a new business paradigm, whereby information is centralized in terms of permitted access but decentralized in terms of who has the power over the information. No longer will masses of valuable personal information be owned and controlled by large corporations, but rather will be owned and controlled by each individual, not only giving the individual the ability to monetize their personal information themselves, but also securing the validity of that information through personal verification and safeguarding against fraud. Supporting blockchain technologies is supporting individual empowerment in our society, a move that undoubtedly scares the power structure at top levels of our current corporatocracy.

Get Your FREE In Depth Numerology Reading

Your life path number can tell you A LOT about you.

With the ancient science of Numerology you can find out accurate and revealing information just from your name and birth date.

Get your free numerology reading and learn more about how you can use numerology in your life to find out more about your path and journey. Get Your free reading.

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Awareness

The Damaging Effects Of 5G Wireless On Your Health

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Wireless radiation is a huge health problem that continues to be ignored and another opportunity for us to gaze into the past of similar occurrences and learn from our mistakes. Take tobacco for example, at one time in history you were considered a fool and ‘crazy’ for speaking up against the big tobacco companies and letting people know that cigarettes compromise our health. Today, science has spoken, and it has spoken for a long time, despite what the corporations put out into the public and the “science” they used to approve these things in the first place.

There doesn’t seem to be much more of a difference between communication companies that sell and manufacture wireless products and services, which, according to hundreds of scientists and countless amounts of publications, are urging authorities to pay closer attention to what wireless radiation is doing to human health.

This is one of the multiple examples where corporate control rules and dictates government policy, policies that favour big corporations at the behest of planet Earth and the rest of the human population. But it’s more so apparent in North America.

European Restrictions

In Europe, multiple countries have restrictions on WiFi and have pointed out some disturbing things. France passed a law in 2015 banning WiFi from all nursery schools, the law states that WiFi must be turned off in all elementary schools when it’s not in use. W wired connection if possible, is preferred. Advertisements directing cell phone use towards young children are banned.

An example from Namibia states quite clearly that current so-called “safety” standards don’t protect citizens from long-term health effects, and that the guidelines governing their use do not guarantee adequate protection against the effects of long-term exposure.

Other countries include Belgium, Spain, Israel, Australia, Italy, Switzerland, Germany, Austria, India, Finland, Cyprus and more.

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Why are they saying no to WiFi? See for yourself:

You can access hundreds of these scientific papers and read more here, just click on the science section and under each heading, there are links directly to the research. If you click on the drop-down tab, a list of scientific references as documentation appears. 


Related CE Article with more information:

Why Multiple Countries Have Banned Wifi & Cell Phones Around Schools, Young Children & Fetuses


Yes, we are making progress, and awareness is being created and steps are being taken, but the corporate take over of North America and almost the entire planet is simply brushing our health under the table, because, unfortunately, they have the power to do so.

At the same time, we are the ones using this technology. It’s becoming so useful, and so easy to just rely on the corporation like we do with everything else. How ironic is it that we raise money and advocate for cancer, yet support the very things that are contributing to it, on grande scales?

Millions of children and adults in schools around the world spend significant amounts of time around wireless devices and Wi-Fi. Many schools are introducing Bring Your Own Device (BYOD) policies and installing industrial wireless routers for tablets. However, wireless devices expose students and staff to microwave radiation that can impede learning and overall health. Studies have shown that microwave radiation can damage reproductive systems, impact the immune system, alter brain functioning, and may increase cancer risk. Tablets have up to 5 antennae that are constantly emitting short intense bursts of radiation even when not connected to the Internet. Wireless devices in classrooms thus result in multiple sources of wireless radiation exposure. – Environmental Health Trust

The 5G Health Concerns

So, what about 5G? Science already indicates that the current wireless technologies of 2G, 3G and 4G – in use today with our cell phones, computers, and wearable tech. – creates radio frequency exposure which poses a serious health risk to humans, animals and the environment. 5G is the term used to describe the next-generation of mobile networks beyond the 4G LTE mobile networks used today. 5G is intended to be the technology that allows the “Internet of Things” (IOT) to exist and connects all internet connected devices together.

Scientists have been studying the health effects of 5G and wireless radiation and are deeply concerned with their findings and are calling for a stop to the rollout of 5G,  as well as a halt to the proposed increase in radio frequency radiation exposure to the public.

Thanks to all of the efforts by various researchers, scientists and more, the world is waking up to this information and it’s actually starting to become talked about within the mainstream. It always seems like such a long process from the point where something is known, to actually mass consensus and action steps being created.

A CBS news report recently emphasized:

The wireless industry is in a race to roll out 5G service. The network is supposed to be up to 100 times faster than current data speeds, but it requires cellphone tower equipment to be closer to users than before. Wireless companies in the U.S. say they’ll have to install about 300,000 new antennas – roughly equal to the total number of cell towers built over the past three decades. That’s causing outrage and alarm in some neighbourhoods, as antennas go up around homes.

5G requires the installation of new equipment across the U.S. Every wireless company is working to build its own 5G network. This is worse than cell phone use, and yet, according to government health authorities, “a limited number of studies have shown some evidence of statistical association of cell phone use and brain tumour risks… but most studies have found no association.”

Waiting for high levels of scientific and clinical proof before taking action to prevent well-known risks can lead to very high health and economic costs, as was the case with asbestos, leaded petrol and tobacco.
Dr. Martin Blank, Ph.D., from the Department of Physiology and Cellular Biophysics at Columbia University, has joined a group of scientists from around the world who are making an international appeal to the United Nations regarding the dangers associated with the use of electromagnetic emitting devices like cell phones and Wi-Fi. He and hundreds of other scientists around the world are currently petitioning the UN, and have been for quite some time, regarding the dangers associated with these devices.

“Putting it bluntly they are damaging the living cells in our bodies and killing many of us prematurely” (source)

Melissa Arnoldi, who leads AT&T’s efforts, said “if it’s not already in your neighbourhood, it’s coming.” This is quite concerning, she told CBS news that “5G uses high-frequency waves that support faster speeds but don’t travel as far as current wireless frequencies. So instead of relying on large cellphone towers spread far apart, they need “small cell” sites that are much closer together.”

Sometimes I wonder, how is this even allowed to happen? Who are the people which control what type of information with regards to our health gets emphasized, and what doesn’t?

This new 5G equipment is currently being installed in a neighbourhood near you.

I’ll leave you with this TED talk by a Silicon-valley engineer turned technology health advocate, Jeromy Johnson.


Related CE Article:

FCC Intimidates Press & Evades Questioning About Wireless & Cancer at 5G Rollout 


 Solutions Exist

You can use a wired connection, which is very fast and in most cases faster than a wireless connection. Minimize your cell phone use, and perhaps look into some devices that may be used to block the biological effects this stuff is, does, and can have on us.

FactSheets:What Parents Need to Know About Wireless Radiation,

American Academy of Pediatrics Recommendation Protect The Ones You Love Card  English,Spanish

BabySafe Project: “Reduce Your Wireless Exposure”English BrochureSpanish Brochure

New Jersey Education Association Minimize health risks from electronic devices”Article,PDF of Recommendations

Get Your FREE In Depth Numerology Reading

Your life path number can tell you A LOT about you.

With the ancient science of Numerology you can find out accurate and revealing information just from your name and birth date.

Get your free numerology reading and learn more about how you can use numerology in your life to find out more about your path and journey. Get Your free reading.

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